{"id":6722,"date":"2025-02-22T10:37:06","date_gmt":"2025-02-22T15:37:06","guid":{"rendered":"https:\/\/communicator.pef.org\/?p=6722"},"modified":"2025-03-03T11:22:27","modified_gmt":"2025-03-03T16:22:27","slug":"pef-members-daughter-is-this-years-celebrity-child-for-variety-kids-telethon","status":"publish","type":"post","link":"https:\/\/communicator.pef.org\/issue\/volume-43-no-2\/pef-members-daughter-is-this-years-celebrity-child-for-variety-kids-telethon\/","title":{"rendered":"PEF member\u2019s daughter is this year\u2019s Celebrity Child for Variety Kids Telethon"},"content":{"rendered":"<figure id=\"attachment_6729\" aria-describedby=\"caption-attachment-6729\" style=\"width: 301px\" class=\"wp-caption alignright\"><img loading=\"lazy\" decoding=\"async\" class=\" wp-image-6729\" src=\"https:\/\/communicator.pef.org\/wp-content\/uploads\/sites\/2\/2025\/02\/Tele-1.jpg\" alt=\"PEF member\u2019s daughter is this year\u2019s Celebrity Child for Variety Kids Telethon\" width=\"301\" height=\"282\" srcset=\"https:\/\/communicator.pef.org\/wp-content\/uploads\/sites\/2\/2025\/02\/Tele-1.jpg 400w, https:\/\/communicator.pef.org\/wp-content\/uploads\/sites\/2\/2025\/02\/Tele-1-300x281.jpg 300w\" sizes=\"auto, (max-width: 301px) 100vw, 301px\" \/><figcaption id=\"caption-attachment-6729\" class=\"wp-caption-text\">Evelynn is the Celebrity Child for this year&#8217;s Variety Kids Telethon.<\/figcaption><\/figure>\n<p><em>March 5, 2025 &#8212;<\/em> <span data-contrast=\"auto\">When Evelynn was born in the spring of 2021, her parents had no idea that seven short months later their daughter\u2019s doctors would find a tumor sitting inside her spine, shaped like a dumbbell with large masses protruding from each end. And shortly after, the family would receive a devastating diagnosis \u2013 neuroblastoma, a form of childhood cancer.<\/span><span data-ccp-props=\"{}\">\u00a0<\/span><\/p>\n<p><span data-contrast=\"auto\">Evelynn is the daughter of Jilynn, a PEF member who works at the Western New York Children\u2019s Psychiatric Center (PEF Division 167). She is also this year\u2019s Celebrity Child for the <\/span><a href=\"https:\/\/varietybuffalo.org\/telethon\/\"><span data-contrast=\"none\">63<\/span><span data-contrast=\"none\">rd<\/span><span data-contrast=\"none\"> Annual Variety Kids Telethon<\/span><\/a><span data-contrast=\"auto\">. She and her family will be part of the 6 to 11 pm. March 8 program on WGRZ, Channel 2, in Buffalo, and the 10 a.m. to 8 a.m. March 9, with labor hour from 1 to 4, on WBBZ, Channel 5 and streaming online.<\/span><span data-ccp-props=\"{}\">\u00a0<\/span><\/p>\n<p><span data-contrast=\"auto\">\u201cShe is a spitfire, she is amazing,\u201d said PEF Division 167 Council Leader Patricia Moran. \u201cShe\u2019s funny. She\u2019s kind. She\u2019s loving. She\u2019s modest. And she loves her baby brother!\u201d\u00a0<\/span><span data-ccp-props=\"{}\">\u00a0<\/span><\/p>\n<figure id=\"attachment_6730\" aria-describedby=\"caption-attachment-6730\" style=\"width: 334px\" class=\"wp-caption alignleft\"><img loading=\"lazy\" decoding=\"async\" class=\" wp-image-6730\" src=\"https:\/\/communicator.pef.org\/wp-content\/uploads\/sites\/2\/2025\/02\/Tele-2.jpg\" alt=\"PEF member\u2019s daughter is this year\u2019s Celebrity Child for Variety Kids Telethon\" width=\"334\" height=\"445\" srcset=\"https:\/\/communicator.pef.org\/wp-content\/uploads\/sites\/2\/2025\/02\/Tele-2.jpg 400w, https:\/\/communicator.pef.org\/wp-content\/uploads\/sites\/2\/2025\/02\/Tele-2-225x300.jpg 225w\" sizes=\"auto, (max-width: 334px) 100vw, 334px\" \/><figcaption id=\"caption-attachment-6730\" class=\"wp-caption-text\">Division 167 Council Leader Patricia Moran poses with the Variety Kids Telethon poster with NYS AFL-CIO President Mario Cilento at the Region 1 to 5 Leadership Conference in Ithaca.<\/figcaption><\/figure>\n<p><span data-contrast=\"auto\">Evelynn was treated at Oishei Children\u2019s Hospital and Roswell Park Pediatric Clinic. She successfully completed eight rounds of chemotherapy and has been in remission for more than two years.\u00a0\u00a0<\/span><span data-ccp-props=\"{}\">\u00a0<\/span><\/p>\n<p><span data-contrast=\"auto\">With the tumor\u2019s location, Evelynn has a spinal cord injury and partial paralysis, but she doesn\u2019t let it stop her. She continues to push forward, participating in physical therapy four times per week through the Robert Warner Center, The Motion Project, and school-based physical therapy. She has made a tremendous amount of progress, including being able to walk for short periods of time with assistive equipment.<\/span><span data-ccp-props=\"{}\">\u00a0<\/span><\/p>\n<p><span data-contrast=\"auto\">If Jilynn had to describe her daughter with one word \u2013 it would be resilient.<\/span><span data-ccp-props=\"{}\">\u00a0<\/span><\/p>\n<p><span data-contrast=\"auto\">\u201cHer ability to overcome the major obstacle of beating cancer and then continuing to overcome all the obstacles of her spinal cord injury just amazed us,\u201d Jilynn said.\u00a0<\/span><span data-ccp-props=\"{}\">\u00a0<\/span><\/p>\n<p><span data-contrast=\"auto\">The family hopes the telethon helps them share Evellynn\u2019s story and raise money for other children facing illness or disability.<\/span><span data-ccp-props=\"{}\">\u00a0<\/span><\/p>\n<p><span data-contrast=\"auto\">\u201cIt has been a privilege and an honor to be able to share Evelynn\u2019s story in an effort to raise funds for multiple agencies that have helped us on our journey of hope,\u201d Jilynn said. \u201cEvelynn has been the face and the voice of the telethon. It\u2019s been amazing to be a part of that. Being able to turn around something horrible that happened to our daughter to something good has given all this some purpose.\u201d<\/span><span data-ccp-props=\"{}\">\u00a0<\/span><\/p>\n<p><span data-contrast=\"auto\">For Jilynn, the telethon is also an opportunity to instill good values in her daughter.<\/span><span data-ccp-props=\"{}\">\u00a0<\/span><\/p>\n<p><span data-contrast=\"auto\">\u201cI think one of the reasons we wanted to do this is for Evelynn to be part of something bigger than herself,\u201d she said. \u201cUsing our story to advocate and help others is a way of hoping and moving forward.\u201d<\/span><span data-ccp-props=\"{}\">\u00a0<\/span><\/p>\n<figure id=\"attachment_6731\" aria-describedby=\"caption-attachment-6731\" style=\"width: 250px\" class=\"wp-caption alignright\"><img loading=\"lazy\" decoding=\"async\" class=\"size-full wp-image-6731\" src=\"https:\/\/communicator.pef.org\/wp-content\/uploads\/sites\/2\/2025\/02\/tele-3.jpg\" alt=\"PEF member\u2019s daughter is this year\u2019s Celebrity Child for Variety Kids Telethon - QR Code\" width=\"250\" height=\"316\" srcset=\"https:\/\/communicator.pef.org\/wp-content\/uploads\/sites\/2\/2025\/02\/tele-3.jpg 250w, https:\/\/communicator.pef.org\/wp-content\/uploads\/sites\/2\/2025\/02\/tele-3-237x300.jpg 237w\" sizes=\"auto, (max-width: 250px) 100vw, 250px\" \/><figcaption id=\"caption-attachment-6731\" class=\"wp-caption-text\">Region 1 has produced a QR code to allow member donations to be attributed to PEF.<\/figcaption><\/figure>\n<p><span data-contrast=\"auto\">The telethon, the longest running, locally produced telethon in the nation, has been serving the needs of Western New York\u2019s sick, disabled, and disadvantaged children for more than 80 years.<\/span><span data-ccp-props=\"{}\">\u00a0<\/span><\/p>\n<p><span data-contrast=\"auto\">\u201cWe are really lucky we have the best cancer institution in the country, Roswell Park; the best children\u2019s hospital, Oishei; and the best psychiatric center, Western New York Children\u2019s Psychiatric Center,\u201d Moran said.\u00a0\u00a0<\/span><span data-ccp-props=\"{}\">\u00a0<\/span><\/p>\n<p><span data-contrast=\"auto\">Anyone can donate to the telethon. Just visit the <\/span><a href=\"https:\/\/varietybuffalo.org\/telethon\/\"><span data-contrast=\"none\">Variety Kids Telethon website<\/span><\/a><span data-contrast=\"auto\"> to get started.<\/span><span data-ccp-props=\"{}\">\u00a0<\/span><\/p>\n","protected":false},"excerpt":{"rendered":"<p>March 5, 2025 &#8212; When Evelynn was born in the spring of 2021, her parents had no idea that seven short months later their daughter\u2019s doctors would find a tumor&#8230;<\/p>\n","protected":false},"author":13,"featured_media":6734,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[1],"tags":[],"division":[],"allowed_regions":[],"allowed_divisions":[],"class_list":["post-6722","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-uncategorized","issue-volume-43-no-2"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO Premium plugin v27.6 (Yoast SEO v27.9) - 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